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"Schizophrenia is not a single unifying diagnosis, and Esmé Weijun Wang writes not just to her fellow members of the 'collected schizophrenias' but to those who wish to understand it as well. Opening with the journey toward her diagnosis of schizoaffective disorder, Wang discusses the medical community's own disagreement about labels and procedures for diagnosing those with mental illness, and then follows an arc that examines the manifestations of schizophrenia in her life. In essays that range from using fashion to present as high-functioning to the depths of a rare form of psychosis, and from the failures of the higher education system and the dangers of institutionalization to the complexity of compounding factors such as PTSD and Lyme disease, Wang's analytical eye, honed as a former lab researcher at Stanford, allows her to balance research with personal narrative"--… (more)
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A major theme of this essay collection is the stigma attached to psychotic illnesses; Wang was forced to leave Yale after it became clear that her mental health issues were severe and chronic in nature.
She sort of lost me in the final chapters when she suddenly came up with a diagnosis of late-stage Lyme disease and started dabbling in "sacred arts". Nonetheless, this memoir in essays offers a valuable perspective on psychotic illness. Well worth reading.
by Esme Weijun Wang
2019
Graywolf Press
4.5 / 5.0
A collection of personal essays about the authors experiences being diagnosed as having a schizoaffective disorder. The love and support of her husband and her family, being financially stable, and having natural
Every essay deals with the stigma attached to mental illness and its challenges.( Struggling to pass as "normal" and to control the delusions and hallucinations, experiencing Cotard delusion where you believe you are already dead. ) Wang persisted, never gave up. Wang was accepted to Yale but her mental issues were too severe, too chronic, and they let her go. She explores the belief that there is a connection between immune-system dysfunction and neurological and psychiatric diseases. She tried alternative medical treatments, tarot card readings in her search for spiritual healing.
Near the end of the book is an essay on her diagnosis of Lyme disease (controversial in itself) that sums up the intention of the entire book for me. Like Lyme disease, so much is known and so much remains a mystery about mental illness. The quality of your diagnosis depends on how your illness is perceived by others. Perception is a huge problem for people with mental illness. How others treat you, and your diagnosis, can make or break a mind.
The essays, overall, show how deep and desperate her search for answers and understanding of her condition affected her life. Maybe more so than the actual diagnosis.
Great memoir and essays and an excellent resource for those who work with the mentally ill. Recommended.
An amazing book.
A couple notes: First of all, a number of these chapters were originally published as essays in various locations, therefore the continuity (flow) of this book is a little disjointed. Don't expect a linear telling of her history with this disease. (More adept readers of non-fiction would probably not be expecting this, but I, the amateur that I am, found it a little disorienting.)
Second, the last quarter of this book contains a few chapters that don't address schizophrenia itself but some alternate diagnoses that she has gotten over the years as well as her diving into religious and mystical thoughts surrounding the disease. Personally I found these chapters less interesting that the first three-quarters of the book. Still well written, but not really on point (imo). Felt to me like (maybe?) they were thrown in to flesh this book out into (what somebody considered) a proper length, but that's a conspiracy I perhaps too often throw out when I feel that a published work could have been trimmed a little.
However, buried in that last quarter somewhere was this line: "Sick people, as it turns out, generally stray into alternative medicine not because they relish the idea of indulging in what others call quackery, but because traditional Western medicine has failed them." Which felt to me like a powerful statement and propelled me through to the end to fully understand what she has gone through.
Stories of mental illness can fall into some well worn traps: there's the tragic memoir, the triumph over adversity, and the "It's not really an illness". Luckily, she falls into none of these. Schizophrenia has not been easy for Wang, and it has not been a blessing, or her source of creativity. However, she's also very aware of the things in her life that have enabled her to be, in her own words, a "high functioning" schizophrenic: her education, her support system. She's unafraid to recount her experiences with delusions and hallucinations, with the Cotard delusion, with PTSD, with her family history of mental illness, and to consider its cost in her life, including her decision not to have children.
Schizophrenia and related disorders, which Wang refers to as "the schizophrenias", are the most feared and most stigmatized of mental illnesses. Wang's own psychiatrist avoided the diagnosis. Literature speaks of schizophrenia as erasing the "real person" within; there's a public association of schizophrenia with violence. The essays do not just address Wang's own personal experience of schizoaffective disorder, but the system: inadequate and patchy treatment, forcing people against their will into treatment, dehumanizing people with mental illness, kicking students out of college, the devaluation of the mentally ill when they are not capable of employment--this being the marker of worth in a capitalist society.
The chronic Lyme essay was the hardest for me; it's hard for me to invalidate her experience, and I sympathize with the desire for answers. At the same time, I've been following the Lyme debate for a decade, and the ways in which the chronic Lyme treatment providers make a lot of money the patients often don't have makes me uncomfortable, and it's hard for me to regard it as harmless.
Doctors and diagnoses come and go, including sexual abuse and trauma by a past criminal boyfriend. But again, there's an emotional disconnect about his late introduction to the book. He was, apparently, the one who ended their relationship.
Suggestions about her condition and its possible causes, in terms that only real scientists might really understand, don't lead to a resolution. A lot ails her, but we never find out exactly what it was, only that it got better after she started lighting candles and using Tarot cards. I just wish she would have got better earlier than the last paragraph.