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The story of twenty-four-year-old Susannah Cahalan and the life-saving discovery of the autoimmune disorder that nearly killed her -- and that could perhaps be the root of "demonic possessions" throughout history. One day in 2009, twenty-four-old Susannah Cahalan woke up alone in a strange hospital room, strapped to her bed, under guard, and unable to move or speak. A wristband marked her as a "flight risk," and her medical records, chronicling a monthlong hospital stay of which she had no memory at all, showed hallucinations, violence, and dangerous instability. Only weeks earlier, Susannah had been on the threshold of a new, adult life, a healthy, ambitious college grad a few months into her first serious relationship and a promising career as a cub reporter at a major New York newspaper. Who was the stranger who had taken over her body? What was happening to her mind? In this narrative, Susannah tells the astonishing true story of her inexplicable descent into madness and the lifesaving diagnosis that nearly didn't happen. A team of doctors would spend a month, and more than a million dollars, trying desperately to pin down a medical explanation for what had gone wrong. Meanwhile, as the days passed and her family, boyfriend, and friends helplessly stood watch by her bed, she began to move inexorably through psychosis into catatonia and, ultimately, toward death. Yet even as this period nearly tore her family apart, it offered an extraordinary testament to their faith in Susannah and their refusal to let her go. Then, neurologist Souhel Najjar joined her team and, with he help of a lucky, ingenious test, saved her life. He recognized the symptoms of a newly discovered autoimmune disorder in which the body attacks th brain, a disease now thought to be tied to both schizophrenia and autism, and perhaps the root of "demonic possessions" throughout history. This story is the powerful account of one woman's struggle to recapture her identity and to rediscover herself among the fragments left behind. Using all her considerable journalistic skills, and building from hospital records and surveillance video, interviews with family and friends, and excerpts from the deeply moving journal her father kept during her illness, Susannah pieces together the story of her "lost month" to write an unforgettable memoir about memory and identity, faith and love.… (more)
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The next month for Susannah was a living hell, as she became manic and paranoiac, continued to have seizures, and went into a rapid physical and mental decline. She was hospitalized and watched closely by her parents and boyfriend, but her medical team could not figure out what was wrong with her, as all of her tests came back normal. Her loved ones became frantic as she continued to worsen, as they feared that the bright and brilliant Susannah that they knew and loved would never recover. Her neurologist that they had come to trust and respect turned her care over to a respected diagnostician, after he failed to discover what was wrong with her, and dismissed her and her family abruptly and brusquely. Her life then became a race against time: would the medical team diagnose this strange illness before it was too late to help Susannah?
Brain on Fire is narrated in the first person, based on Susannah's own recollections and those which came from her family, boyfriend, medical staff and colleagues during the month in which she experienced the worst of her nightmarish symptoms. She uses her journalistic skills to create a compelling medical mystery, which I could hardly put down until the last page. In addition to a fascinating story it is also a wake up call to physicians who are quick to label or dismiss patients' symptoms that they cannot adequately explain, and a reminder that a good medical history, a perusal of the medical literature, a curious and inquisitive mind, and a willingness to seek help from colleagues for the most difficult cases will often uncover the right answer.
In 2009, Susannah Cahalan was an energetic and healthy twenty-four year old. She was a cub reporter
In a harrowing narrative style, Susannah tells the story, piecing it together from interviews with the hospital staff, family and friends, trying to reconstruct this nightmarish puzzle, of those few lost weeks. She ends up writing a very solid memoir, that will leave the reader shaken, but with a better insight into the many facets of mental health care and how the brain functions.
I devoured this one during a transatlantic flight; it's exactly the right kind of book for reading in one or two sittings. The true story of how Susannah Cahalan turned from a feisty young career journalist into a drooling madwoman with occasional lucid
I think the life lessons I drew from this memoir were: Keep Your Apartment Clean and Don't Believe Doctors When They Tell You You're Just Plain Nuts. An excellent read for those of us who are curious about weird mental illnesses, attracted to other people's suffering (oh come on, don't tell me otherwise) or just generally ghoulish. Lots of medical info for those who like that sort of thing or think they may have a similar condition.
The idea that medicine is in its infancy, and that we are sometimes at the mercy of its incompetence, hits home. Susannah’s odd assortment of symptoms eluded all of the professionals she visited. They could not offer an accurate diagnosis. Doctors, family and friends were at a loss to explain the changes in her physical and emotional health, in her work habits and in her behavior, yet she needed their support. Luckily, she is here to tell the tale.
This book will surely raise many questions about the state of our health care system.
This book scared the daylights out of me.
There are so many parts of the breakdown here that read like regular parts of life.
I quickly come to a realization that this is the reason to surround ourselves with friends who know us(well). People who
Sure we can ask ourselves that question as much as we want but it really helps to have someone around who can tell us that we are alright. Even so, it takes a true friend to not try to sugar coat things thinking that we might be having a bad day or over dramatic meltdown as opposed to an entire breakdown.
How and when do we define the line that has to be crossed before we realize that something proactive has to be done to get to the bottom of the overwhelming feeling of hopeless helplessness that's gripped us from out of nowhere?
In reading this I suddenly wondered how anyone can abuse drugs to an extent that they might experience something similar to what happened here. Yet it's so obvious that some people actually do just that, when one of the doctors makes that assumption right from the start.
This book has altered the way I look at some things. I've never really had much recollection of my life before the age of five. The few memories I have had, which or only two that I recall, are now very suspect when coming to a more full understanding of how the memory works. Not to mention the rest of the parts that I do remember and that my siblings like to suggest I've remembered incorrectly.
I look at how fragile the mind is in respect to Susannah's experience and it makes me want to wear a crash helmet everywhere I go. That won't help much though when dealing with what happened here.
Reading this has been a true eye opener.
And just for the record Susannah:
You may have changed from this experience, but what you wrote here and how it touched me says that when you wrote this you were operating at 100 percent.
Mind boggling scary with some light at the end of the tunnel. Everyone needs to read this.
J.L. Dobias
But then, she did and does write for the New York Post...so I should have took that as an early warning.
One morning before going to work, she noticed two bite marks on her arm. She immediately thought bedbugs and was embarrassed about the possibility. She went to work and started to feel like she was coming down with something like the flu. That was the first time that she knew something was wrong.
Her parents stood by her and demanded to know what she had. She did too until the worst of the disease. She experienced seizures, strange sensory perceptions that lead to not eating, paranoia, schizophrenic like behavior and even catatonia. She forgot things, people, and seemed to be in a different world. She had the tests, blood tests, MRIs, you name it.
Why was she sick? Would she ever come back to being able to relate to people? What did she have? Was it an infection, a mental illness, epilepsy or an auto-immune disease? She was seen by many neurologists and other specialist. Finally a test that didn't cost a single cent was given to her by Dr. Souhel Najjir. He had listened to her carefully and noticed something that others had ignored. That made him want try this test. The results brought an important discovery and then more and more information about what she had or more correctly has. People do have relapses!
Susannah in the throes of this terrifying disease was not herself anymore, this disease made her lose weight, become weak, and have behavior that easily land her to be permanently locked up in a mental ward until she died from this disease. How many others with this disease have been locked away or had their family use an exorcist?
I cannot recommend this book high enough, it is amazing! It is a story of perseverance and not giving up hope. I hope that everyone with a disease that has still not been diagnosed or diagnosed incorrectly reads this book.
Imagine being a normal, healthy young adult with a promising journalism career until your body attacks your brain and you go
Brain on Fire is based on Susannah’s award winning article, “My Mysterious Lost Month of Madness.” It is at once a fascinating and disturbing look at an experience that could happen to anyone. Right from the preface, Susannah draws the reader into her mysterious nightmare and her confusion. Because much of that month of illness is lost to her, she drew on her skills as a writer and journalist to piece together her experience. Not only is light shined on a relatively rare, but very disturbing medical condition, the story is a personal one. The entire family drops everything to save Susannah. In the end, no one is ever quite the same.
The devotion of Susannah’s family and friends, her honest and unflinching look at this devastating experience, her triumphs and her fears, and the brilliance and compassion of Dr. Souhel Najjar whose refusal to give up saved her life, all make for one of the most amazing stories I have ever read. Not only do I admire Susannah for looking her nightmare in the face and sharing it with the world, I see Brain on Fire as a work that will continue to have a profound effect on neurology and the study of the brain.
On a personal level, I was left with the feeling that I will never again take my brain for granted. The simplest tasks require complex actions from our brain. And damage, infection, or this newly discovered autoimmune disorder can take all of that away. As a person who has lived with bipolar disorder all of my adult life, I was particularly fascinated by Susannah’s story and her research. It hit very close to home. I’m so glad she was brave enough to write it, and I applaud all of the people that refused to give up on her. Because of her experience, many others have already been helped. Brain on Fire is more than a memoir of a hellish experience; it is a groundbreaking book in the field of medicine.
I highly recommend it. It will touch your heart; it will fascinate you, and it will forever change the way you look at mental illness.
This well-written book also dips into the question of how many psychiatric patients may be suffering from undiagnosed organic diseases.
Susannah Calalan’s body was attacking her brain and slowly, everything that she was as a person was disappearing. How frightening can that be? In its place were sudden burst of violence, hallucinations, seizures, extreme memory loss, schizophrenia-like symptoms, and ultimately catatonia.
The disorder is called anti-NMDA-receptor autoimmune encephalitis. And although the disease deprived the author of a great deal of memory about the events, she was able to reconstruct them and write about them by applying her journalist skills. She interviewed everyone who came into contact with her, studied all her medical reports in detail, and analyzed any videos that existed from her hospital stay.
Brain on Fire is a brilliant and eye-opening piece of first-person journalism. I recommend it highly…and I enjoyed it immensely.
Great for those interested in medical and psychological memoirs.
With PANDAS causing OCD through autoimmune response to infection and Susannah's story of
I enjoyed this book immensely.
Recommended for fans of medical memoirs and medical thrillers.